Educating Health and Other Child-care Professionals

 

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Ever had difficulty explaining to professionals why it is important that your child’s history of adoption and institutionalisation be taken into consideration? I have! Our daughter was 3 years old when we adopted her from China and had spent most of her life prior to placement in an orphanage. Institutionalisation and the trauma of an abrupt placement in our family had a huge impact on her. However, most of the health care and other professionals we dealt with had no knowledge or understanding of how institutionalisation affects children. Educating them from scratch was difficult, there was no single piece of writing I could give them that would provide all the information they needed. The first year post adoption was hard for all of our family, our daughter was traumatised and we were sleep deprived and emotionally exhausted. I determined that when I could, I would write something that other parents could use to easily educate their health and other child-care professionals in the early post adoption period. The following article is the result and is aimed at the types of professionals adoptive families might interact with including, but not limited to, doctors, early childhood nurses, social workers, early intervention teachers, school teachers and child care providers. You may wish to give this article to your health or other child care professionals to read, highlighting areas that you feel are particularly relevant to your situation. As health and other child-care professionals are often busy, it may be worth sending this article to them before your appointment and include an explanatory letter like the one shown below. In our experience, assisting the professionals, who were assisting us, to understand the situation was extremely beneficial. I hope that this article is of help to you as you seek to advocate for your child.

 

Karleen Gribble

 

Sample Letter

 

Dear Dr Jones

 

My name is Mrs Smith. I have an appointment to see you on the 26th of January with regards my daughter LiJun. Li Jun recently joined our family via adoption and prior to placement had spent some time in institutional care. Thus, her early life experiences were very different from those of children growing in their family of origin, which will impact any care plan for her.  I have included an article with this letter that details issues that health and other childcare professionals might need to consider in caring for a child who has spent some time living in an institution and have highlighted areas that are particularly relevant to Li Jun. I would appreciate it if you could read this article prior to our appointment, as I believe it will assist you to understand the special needs of my daughter.

 

Regards

 

 

 

Issues for paediatric health care and other child care professionals to consider in treating the post-institutionalised child

 

 

Summary

 

Introduction

Each year there are nearly 300 intercountry adoptions in Australia. Many of these children have spent at least some of their life in an orphanage, experiencing institutional care, which has had a far-reaching impact on them. Most of these children will have some interaction with paediatric health or other child care professionals in the months and years after their adoption. However, knowledge of their special needs is outside the experience of most professionals. This article aims to provide a background on the experience of children in institutional care and highlight issues for health or other child care professionals to consider in caring for a post-institutionalised child.

 

 

The experience of children in institutions

The experience of a child in an institution is very different from that of a child in a family. Though institutions vary widely in the quality of care they provide, they generally have high child to caregiver ratios, which do not allow for individualised attention; they may also be lacking in heating, cooling, space, toys or nutrition. The physical and emotional deprivations of institutionalisation can result in a raft of problems including trouble with forming relationships (attachment difficulties), physical and developmental delays, language issues and sensory integration issues. This is institutional neglect.

 

Institutionalised care is generally not able to provide a consistent and sensitive caregiver with whom the child can trust and form a healthy attachment. Development of trust and a secure attachment normally occurs through interactions in which a primary caregiver meets a child’s needs in an appropriate manner resulting in reduction of discomfort and in feelings of relief. This cycle of need-distress-gratification-relief-need is ordinarily repeated many thousands of times in the first years of a child’s life but is absent or greatly reduced in the experience of institutionalised children. The absence of this attachment cycle in the early years of a child’s life can be incredibly damaging and impact their ability to develop relationships and function in society.

 

High child to caregiver ratios also limit the physical experiences of children who may be restricted to a cot/room for extensive periods of time, may spend very little time in interaction with any adult and are unlikely to have treatment for any physical special need they have. As a result, many children will not meet gross or fine motor milestones during the time they are institutionalised. Nutritional deprivation or contamination of food or water with toxins such as lead or mercury can also impact development and health. Some children will experience sexual or physical abuse and infectious diseases and parasites are easily transmitted in the collective living conditions of an institution.

 

Many of the medical issues that need to be considered post adoption are obvious to medical practitioners who know to routinely test for infectious disease and parasites, reliability of immunisation record and to organise developmental, hearing, sight and dental checks. Guidelines for health care professionals are readily available on these topics, however, there are matters that may be less obvious but are nonetheless important for health and other childcare professionals to consider. This article will discuss some of these issues including sleep issues, peer interaction and language acquisition, food, hospitalisation, over friendliness or “over attachment”, developmental delays, obscure symptoms, issues of diagnosis, and of consideration of the needs of the parents.

 

Different children will be impacted differently by institutionalisation, not just because the quality of care they experience may be different but also because their internal resources for dealing with their environment and care or lack of care will be different. Some children, potentially those adopted at a younger age, will appear to emerge relatively unscathed but others may be profoundly affected. Few children will have all of the problems listed here and those that do will likely have them only for a short period of time. Children are remarkably resilient and sensitive caregiving can result in incredible healing for many children. However, it is vital that appropriate care be given in order for healing rather than exacerbation of problems to occur.

 

 

Sleep Issues

Sleep problems are extremely common in newly adopted, post-institutionalised children and can be the most challenging aspect of parenting in the first year post-adoption. Both difficulty in getting to sleep and night waking may occur and last for months to years.  It is not unusual for a newly adopted child to take several hours to go to sleep at night and to wake a dozen times or more in distress. However, sleep difficulties are not the problem that needs to be solved, rather they are a symptom of an underlying issue. Possible reasons for sleep difficulties may be a result of trauma, an inability to feel safe, or that night has been an unsafe time for them in the past.

 

For most post-institutionalised children, adoption is a traumatic event. The placement is often abrupt, with little or no preparation given to the child who experiences a change in caregivers and a drastic change in environment. Communicating to the child what is happening to them is often difficult because of language differences. Children may be able to consciously control their reaction to the stress of the new environment during their waking hours but in a more relaxed state during sleep their anxiety and or anger is exposed. Night is also a time when grief can more easily surface and the losses that a child has experienced may be revealed.

 

Children may also have difficulty sleeping because they do not feel safe and to sleep well a feeling of safety is required. The upheaval in the child’s life means that they know that any change is possible. They may fear what changes may happen while they are asleep and fight sleep, sleep with their eyes open or wake in fear during the night. Night can also be an unsafe time in an institution as are there generally few caregivers at night (one per 20 children is common). Thus, if children are being abused, it is likely to happen at night, contributing to feelings of unsafety.

 

Since sleep difficulties are a symptom of a deeper problem, sleep training techniques such as controlled crying/comforting are not suitable for children who have lived in an orphanage. Such techniques, can cause further damage to an already hurt child as they learn that they cannot trust their parents to respond to their cries. However, in responding sensitively to children’s cries at night over time, parents may assist the child in working through the trauma of placement (or other past traumas) and in feeling safe in their new environment. Being with the child as he/she goes to sleep is advisable. Some families find that co-sleeping, placing the child’s bed next to or in the same room as the parents’ bed alleviate symptoms. Co-sleeping in particular has been mentioned by many parents as being pivotal not just in improving sleep for everyone but in promoting trust and attachment. Remaining close to the child during the day and maximising physical contact at every opportunity (for example; avoiding the use of prams and baby chairs but instead using arms, sling or lap) will also assist in building trust, attachment and improving sleep. It is important to realise however, that no intervention is likely to result in immediate alleviation of sleep difficulties and that time is required. Parents whose child has severe sleep difficulties will need to find strategies to assist them in coping with the situation. This may include catching up on sleep during the day or on weekends, sleeping whenever the child sleeps, suspending non-essential activities and assistance garnered from family or friends to maintain the household. Support from health and other childcare professionals is vital for parents who may struggle with sleep deprivation and parenting in a way that is outside of the cultural norm.

 

Peer interaction and language acquisition

 

It is conventional wisdom that children need to socialise with other children in a group environment in order to develop social competence. However, group childcare environments are not appropriate for the post-institutionalised child in the immediate post-adoption period. If children are placed in a group care environment they may become stressed because it reminds them of the institution they came from and they fear abandonment. Alternatively, they may seem to fit right in and wish to spend more time there, finding the closeness of family life stressful and wishing to avoid the intimacy there. Neither of these situations are in the child’s best interests. Some families of post-institutionalised children find that the needs of their child may necessitate delaying schooling or homeschooling. If entry into daycare or school is necessary, the introduction should be made gradually and parents should be supported in any requests they make, with regards the special needs of their children. Teachers may need to assist the child to distinguish between themselves as temporary, part-time carers and the parents as permanent family and take care that they do not inadvertently usurp the parental role.

 

It is often suggested to migrant families that daycare or school may be helpful in language acquisition. However, as mentioned, group childcare environments are problematic for post-institutionalised children and since their adoptive families speak English, it is in interactions with parents and siblings that the new language is best acquired. It also needs to be recognised that issues associated with language acquisition for post-institutionalised children may be different from migrant children learning English as a second language. This is because migrant children are generally learning English within the context of speaking their first language at home and often after having obtained competence in their first language. However, post-institutionalised children most often do not have parents who speak their first language. In addition, children may not have developed age appropriate language competency prior to placement because the low child to caregiver ratio in institutions means that children associate primarily with same aged peers with similar language deficiencies. Thus, the building blocks of language may have been missed, presenting special issues for post-institutionalised children.

 

Food

There are several situations in which food can be an issue for the post-institutional child. Because many children have experienced food scarcity in institutional care they may hoard or overeat. This problem is usually mitigated with time and allowing the child to have free access to food (placing nutritious snacks where the child can reach them or packing a lunch box for the child to carry around). Restricting access to food may make the problem worse. Children may also not have developed the capacity to recognise the feeling of satiety or hunger since they may have been given food on a schedule and regardless of individual need. Parents may need to encourage their child to make a connection between body signals of hunger or fullness and their relationship to food.

 

Some children may not have experienced much variety in food and may need a gradual transition to other foods. In some cases, children may have been sustained solely on bottle feeds well past the age at which solid food would normally have been introduced and may refuse solid food. Professional assistance with a speech pathologist familiar with sensory integration work may be required to ameliorate this problem.

 

It is also common for children to regress in eating habits at the time they are adopted. Regression is a frequently observed response to trauma and, as discussed previously, placement is traumatic. Children may also seek to regress in order to experience some of the nurturing that they missed out on earlier in life. Thus, children capable of feeding themselves may wish to be fed, children long weaned may request bottle feeding and some children pursue breastfeeding with their new mother. Regression should not be viewed as a problem but as an opportunity for the child to experience the care that they did not get as an infant. Adoptive families are encouraged to provide times where their child can be ‘babied’ if their child does not seek it and bottle feeding especially is promoted well beyond the normal age at which a child would be weaned. Health care professionals concerned about dental caries should suggest preventive measures that do not involve weaning from the bottle.

 

Hospitalisation

Hospitals and the procedures that happen there can be frightening for any child but for post-institutionalised children there are additional reasons why they might be anxious. The hospital environment, for many children, is reminiscent of the institution in which they once lived and this can create great fear as they may believe they will be abandoned at the hospital. In the short term they may react to this stress by shutting down, disassociating, becoming hyperactive or uncooperative (note: these symptoms may be seen in any stressful situation). Some parents have found that even a day visit to a hospital can disrupt the child for several weeks. Thus, post-institutionalised children who are hospitalised may need to have their parents with them at all times, regardless of their age. Usual hospital procedures may need to be modified in order to accommodate this and provision made for parents to sleep with their child. The potential seriousness of the long-term consequences of not doing this cannot be understated. If the child feels that they have been abandoned in the hospital because their parents have not been allowed to remain with them the attachment relationship that has been developed since adoption may be severely damaged. Delaying procedures that require hospitalisation should be considered to allow the child time to adjust to life in their new family and for strengthening of relationships prior to another stressful event. If the primary caregiver of a child requires hospitalisation, accommodations may be needed to minimise the impact on the child. Illness affecting a parent can be extremely scary for children who may regress or exhibit changes in behaviour as a result of anxiety.

 

 

Over friendliness or “over attachment”

Over friendless to strangers (called indiscriminate affection in the literature) is a common behaviour in post-institutionalised children. In institutions, where there are few carers, children learn to be cute and engaging in order to maximise adult attention. This is a survival mechanism since children who receive no human touch are at increased risk of morbidity or death. Post-placement, children sometimes seek to be attractive to strangers, seeing every adult as a potential new caregiver. Children presenting with this behaviour need to learn that there are different types of relationships with adults and that family is something special.  Parents have had success in teaching their children this by limiting the opportunity for contact with other adults and instructing those adults that they interact with of the boundaries they have set with their child. Children are told with whom they may cuddle (initially it is advisable that this is only mum and dad) or hold hands or talk and specific instruction on relationships provided. Emphasis can be placed on how parents care for their children and that children in families do not need to look after themselves. Explaining to children the concept of “circle of care” is often helpful in aiding children understand the inner sanctum of family and how extended family, friends and acquaintances are spread out like ripples on a pond; the distance from the centre indicating the closeness of the relationship.

 

At the same time that children are seeking the attention of strangers (or sometimes apart from this behaviour), these same children may strive to distance themselves from their parents, particularly their mother. Thus, children may avoid making eye contact, avoid physical contact or be stiff while being held or act in such a way as to attempt to make themselves undesirable to their parents. Fear of intimacy is behind this behaviour as post-institutionalised children have experienced multiple caregiver loss and learnt that they can rely only on themselves. This can be very difficult for parents to deal with, particularly the mother who is often the primary caregiver and the focus of the child’s rejection. It can also be easy for parents to come to consider that their child is naturally independent and to allow them to maintain emotional distance. This however, is not in the child’s best interest as healthy independence can only grow from healthy dependence on a primary caregiver and the long-term consequences of accepting distancing are serious. Families may need to be supported by family, friends and professionals if they are not to take the rejection of their child personally. They also need health and other childcare providers to believe them when they describe their experiences, as children will often present very well in public, saving their troublesome behaviour for home.

 

Parents often find that they are able to assist their child to trust and build attachment with them by gently persisting with closeness and not accepting the rejection at face value. It is not a case of forcing closeness on a child but providing closeness in ways that the child finds acceptable and gently increasing their tolerance over time. Activities that build trust and maximise close physical contact can also assist with this; for example, carrying the child in a sling, cosleeping, cobathing, swimming together, playing games that initiate eye contact, dancing together, massage and hand feeding. Assisting the child to develop a secure attachment with a primary caregiver may be the most difficult part of parenting a child with past hurts. There is a continuum of attachment from securely attached to severely attachment disordered. As children with severe attachment disorder may exhibit extreme antisocial behaviour as they grow (including aggression, lying, cruelty and self destructive behaviour) and find it difficult to function in society early intervention on attachment is vital. Families with children with severe attachment issues may need professional assistance.

 

Some children rather than rejecting parental care become what some view as “over attached,” usually to the mother, and cannot tolerate being out of her sight. In fact, such children are insecurely attached and, fearing loss of another caregiver, determine to never leave her side. This can be wearing for mothers however, resolution can only be achieved if the mother gives her child the closeness needed, allowing separation only when the child is ready to do so, moving from short periods of separation to longer and emphasising the permanence of the relationship. Forcing separation will have the opposite affect of what is desired and will prolong insecurity of attachment.

 

These three behaviours can be challenging for parents not just because they may be difficult to deal with but also because Western culture values independence in children. Thus, the support of health and other childcare professionals for parents in caring for their children in such a way to promote a secure attachment is invaluable.

 

Developmental delays

Children who have spent an extended period of time in institutional care are often developmental delayed and physically retarded in growth due to physical and emotional deprivation. Children will often have three different “ages,” a chronological age, a developmental age and an emotional age, which may vary widely from one another. Their developmental age will depend upon the care they have received prior to adoption. In many institutions, babies are left lying on their backs for extended periods of time and preschool aged children may be restricted to a cot for most of the day and therefore have poor gross motor skills. Even older children are likely to have had a limited opportunities for physical or fine motor activities and thus will compare poorly to children in families. However, children often experience enormous catch up growth developmentally and physically after placement and can benefit from the assistance of physical therapy and early intervention services. Developmental assessments shortly after placement can assist in tracking the child’s progress though it should be kept in mind that they may not be a good indication of the long-term prospects for the child. It is also worth considering that although children often rapidly improve post-placement some children have permanent damage as a result of their early experiences, it should not be assumed that children will catch up or that they do not need assistance. Children’s emotional age will be related to the quality of relationships the child has had prior to placement. If the child has not had sensitive care from a primary caregiver their emotional growth will be severely retarded. Many suggest that the emotional age of the child is linked to the length of time they have been in a family. Thus, a 5 year old adopted at 3 years will have emotional needs close to those of a 2 year old born into their family and may express this in their needs and behaviour. This may be important in considering for example how tests might be administered matching testing procedure with emotional maturity rather than chronological age (eg hearing or sight tests).

 

Obscure symptoms

Some unusual behaviours may present in post-institutionalised children that may not at first appear to be connected to a child’s history but are indeed related.

 

Children who have been institutionalised may have difficulty in recognising the signals their body is sending them. Such abnormal physical responses have already been discussed in relation to feeding but can also present in relation to pain responses and waste elimination. Thus, children may have an abnormally high tolerance to pain and may not recognise the need to go to the toilet (for example, physical discomfort may be expressed as emotional discomfort or as anger). The lack of recognition of body signals in relation to food and waste elimination is a direct result of the regimented life of an institution where eating, sleeping and toileting are on a schedule, regardless of body signals. A separation of body signals and action results in the quenching of normal response in some children.  High pain thresholds can result as caregivers are consistently unable to respond to a child’s pain or discomfort. Parents of newly adopted children who exhibit an inability to recognise body signals may need to assist their child to make a connection between what their body is experiencing and why they are experiencing it.

 

Lack of a responsive primary caregiver can also result in a child not developing normal object constancy (since the primary caregiver is the first ‘object’) and they may have difficulty in recognising/recalling the existence of something they cannot see or in distinguishing their own boundaries. For example, a school aged child who stands in front of a parent with eyes covered saying, “you can’t see me”.  This “real space” conceptual incapacity fuels its emotional counterpart and for example, a child seen to commit a naughty deed may deny responsibility expressing the same emotional lack of objectivity (often referred to as “crazy lying”). Responsive care giving and playing baby games that involve breaking and regaining contact (eg peek a boo) can assist children in developing this vital developmental milestone.

 

In addition, since primary caregivers act as regulators of infant physiology and emotion, children who have lacked this external regulator do not develop normal self regulation. Thus, post-institutionalised children may appear loud or hyperactive and have difficulty managing and recognising emotions. Parents sometimes feel that their child oscillates from being in control to being out of control (or out of balance). In situations where the child is out of balance they find that bringing the child physically closer to them, limiting choice (essentially acting as an external regulator) and reducing stress assists.

 

 

Another impact of non-responsive care in institutions is that post-adoption some children expect that their parents will be similarly unresponsive and so do not cry when they are hurt or in need. For instance children have been known to be sick during the night but will not call out to awaken their parents but will lie in their vomit and waste until morning. A baby who does not cry when upset, hurt or in need because they do not think their parent will respond is not a “good” baby but a badly hurt child. Such children need to be taught that parents care for their children and want them to ask for help. Parents can assist their child by watching them carefully for any signs of discomfort, intervening to provide what is needed as early as they can.  Children may also appear very happy in after only a few days post-placement, laughing, joking and being very engaging. However, this response has a similar root as “over friendliness” in children believing that they need to be attractive to adults in order to survive and families and professionals should not be fooled.

 

Self-soothing is common in post-institutionalised children who have not had comfort from caregivers. Children frequently self-sooth using such methods as finger sucking, rocking, head banging or masturbation. It is unwise for parents to seek to forcibly remove self-comforting behaviours from their children. However, such behaviours can be gently discouraged with the parent attempting to be a source of comfort to the child. It is important that the child not be made to feel that they are doing something shameful in self-soothing.

 

Some post-institutionalised children self-mutilate by scratching or biting/hitting themselves or pulling off fingernails. In some cases they are hurting themselves because they have the poor physical boundaries and abnormal physical responses described earlier and causing pain to themselves helps them to feel something. In other cases, the neglect a child has experienced has left them feeling unlovable and with a deep sense of shame and their self-harm is in response (this sense of shame is also seen in out of proportion responses to correction, lack of confidence, performance anxiety or perfectionism). In still further cases, self-mutilation occurs in response to stress and as a distraction from emotional pain. In order for self-mutilation to be extinguished, the root cause of the behaviour needs to be addressed. Sensory integration therapy, reducing stress and assisting the child to develop a secure attachment are helpful in reducing self-mutilation. Parents need support in tackling self-mutilation; most find this expression of hurt deeply upsetting.

 

Post-institutionalised children are often bossy and controlling in relationships having been used to needing to look after themselves and seeking to control their world post adoption. This is an artefact of anxiety and one that needs to be resolved so that the child can learn to trust their parents to care for them. Parents may need to constantly remind children that it is their job to look after them and that the child does not need to worry about looking after themselves. Providing some predictability in daily life and preparation for changes can also assist the child to feel safer. Allowing the child to control everything will be counterproductive in the long term.

 

It is tempting to think that a child from deprived conditions should be given as much stimulation as possible in order to help them to catch up. However, this is not a good idea as children are under an incredible amount of stress post-placement as they learn to survive in a new world. This stress has been measured in high cortisol levels and is evident in some of their behaviours. For instance, it is common for children to be hypervigilant meaning that they never relax but watch everything very carefully, seeking patterns and understanding of what is required of them. This often results in children picking up new things very quickly. However, minimisation of stress should be something that parents aim for and since post-institutionalised children have been used to a very small, predictable world it is advisable for parents to also restrict the flow of new things so there is not too much for the child to have to process.

 

The stress that children are under and the limited world they have lived in leads to other problems. Many children have difficulty with any transition (eg from wake to sleep, from home to out etc) and also may take a long time to be comfortable in a new environment or with new people, including situations in which they are seen by health or other childcare professionals. Routine is often very important to children, in their eyes predictability means safety. In these cases it may take months of interaction before the real personality of the child is revealed. In addition, many experiences normal to children in families are foreign to them and extreme reactions to situations such as seeing a dog or walking on grass are to be expected. Older children may not know how to play with toys and need to be taught how to play.

 

Many children exhibit great grief at the loss of previous caregivers. Exhibition of grief is a sign that the child had been attached to their caregiver and this is a good thing as the child can transfer this attachment to their new parents. A child who does not grieve a previous caregiver may not have been attached to anyone and may have difficulty building attachment without prior experience of an attachment figure. Thus, allowing the child to grieve is important and if possible, it is helpful to maintain contact with previous caregivers.

 

Issues of diagnosis

Issues associated with trauma, abuse or neglect can make diagnosis and treatment of other problems difficult. Thus, a holistic, multidisciplinary approach is required. Although the effects of institutionalisation on children can be devastating and long lasting, not all of the problems that a child presents with may be a result of institutionalisation and it is important not to assume that this is the case.  Since many of problems can get worse without treatment rather than better with time it is important to watch these children very closely and refer to specialist care when necessary.

 

It is also easy to forget where post-institutionalised children have come from when they present well groomed and looked after with their caring adoptive family. Thus, it is easy to make assumptions about what to look for based on the child’s current environment and not their previous one and miss opportunities for early diagnosis and treatment.

 

Consideration for the parents

When a family adopts a child from an institution they are taking a step into the unknown. Often little is known about the child they are adopting and there is no way for them to predict how the child will adjust to being in their family and what problems will arise. The initial adjustment of a child post-adoption can last for a very long time, at least a year, sometimes longer.  The best-prepared family may find themselves surprised by what they encounter, thus, the parents of a post-institutionalised child also have special needs. A parent or a four year old who has been with them since birth is not in the same position as a parent of a four year old who has only been in the family 6 months. Society considers that the birth of a child into a family, though a joyful event, is also difficult and support is often forthcoming at this time, however, adoption of a child, particularly an older child is often not similarly supported. Lack of support and understanding from those around them can add to the exhaustion that new parents feel. Health and other childcare professionals can aid families in providing a listening ear and not dismissing the concerns they express about their children. Conversely however, professionals should be aware that some families may not have a basis for comparison of normal child development and may need assistance in understanding where their child is in need of help.

 

Although this article presents a quite extensive list of potential issues that families might face, it is far from exhaustive and it is important to be aware that families may have other concerns not mentioned here. It is also helpful for health care professionals to consider that post-adoption the family may have a multitude of issues that they need to deal with and will prioritise taking action. Thus, if they do not follow a course of treatment immediately this does not mean that they are not serious about helping their child but rather that there may be more urgent priorities at that time. It is prudent, therefore, for healthcare professionals to retain the lines of communication open with adoptive parents, each are seeking to care for the child, but in different ways and each must be able to hear and respect the others viewpoint.

 

 

Adopted and foster children who have not been institutionalised

A significant proportion of children adopted to Australia have not experienced institutionalisation but resided in foster care prior to adoption. This is generally a much better situation for children and means that many of the issues described here are less likely to occur. However, even children who have been in excellent foster care since shortly after birth have still experienced multiple loss of caregivers and a dramatic change in environment at adoption. Thus, they may still grieve post-adoption and for example have sleep difficulties that have a root in feeling unsafe. Generally the more moves a child has experienced the greater the impact. The approaches for dealing with these issues in post-institutionalised children also apply here. Many foster children with histories of abuse, neglect and/or multiple placements will present with many of the same issues as post-institutionalised adopted children and similar care strategies may be helpful.

 

Conclusions

This article has presented a summary of the issues with which post-institutionalised adopted children may present and the ways in which health and other child care professionals may assist them and their families. It is very important that it be kept in mind that not all children present with these issues and that for many children the problems they have a relatively short lived.  Post-institutionalised children are not abnormal and to pathologise them because of their history does them and their families a great disservice. Rather, the responses described here are normal reactions to an abnormal environment. Children are not meant to live in institutional care but in families, for many children growth in a family after adoption provides them the opportunity to heal from past hurts. Although the immediate post-placement period can be challenging for families seeing their child grow and heal is something that parents and those who have assisted them find particularly rewarding.

 

 

A list of references can be obtained by emailing karleeng@uws.edu.au

 

Suggested Reading

Karen, R. (1994). Becoming Attached: first relationships and how they shape our capacity to love. Oxford University Press.

Keck, G, Kupecky, R.M. (2002). Parenting the Hurt Child: Helping Adoptive Families Heal and Grow. Pinion Press.

Montagu, A. (1986). Touching: the Human Significance of the Skin. New York, Harper and Row Publishers.

Schore, A.N. (2001). Effects of a secure attachment relationship on right brain development, affect regulation and infant mental health. Infant Mental Health Journal 22: 7-66.

Schore, A.N. (2001). The effect of early relational trauma on right brain development, affect regulation and infant mental health. Infant Mental Health Journal 22: 201-269.

Small, M.F. (1999). Our Babies, Ourselves: How Biology and Culture Shape the Way We Parent. New York, Anchor Books.

 

Karleen Gribble is the mother of two children, one born to her and the other adopted as an older child from institutional care in China. Her adopted child came home with a physical disability and developmental delays that have necessitated consultation with and treatment by a wide range of health and other child care professionals. Most of these health care professionals had no experience in treating a post-institutionalised child and did not understand the issues involved. This article has arisen out of her experience as she found that providing information to health care professionals about the affects of institutionalisation helped facilitate communication and increasing the appropriate individualisation of care. Karleen is also a scientist and is Adjunct Research Fellow in the School of Nursing, Family and Community Health at the University of Western Sydney, NSW, Australia where her research focuses on adoptive breastfeeding and the impact of breastfeeding on hurt children.

 

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